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Condoléances
| Sharon Wall | and friends | September 29, 2008 |
The following were inclusions on a website that was set up to assist Helen and the girls in the caring process whilst she was sick. It now becomes a record of one big enormous and loving cuddle for a very special woman .
| Sharon Wall and all | Ms | September 29, 2008 |
message by
Deserae Horswood
To all that loved our beautiful mother,
Mum's farewell has been organised for Wednesday 17th September at 1pm at the Church of Christ on Hume St. The wake will be held at the Horswood home after the service to finish the farewell in true Helen style.
Please spread the news far and wide to anyone else you might know that may not be aware as I'm afraid Jenna and I know only a small number of Mum's adoring fans :)
Would be wonderful to see you there so we can all say goodbye, share some stories and toast her on her way
Much love
Deserae and Jenna
Mum's farewell has been organised for Wednesday 17th September at 1pm at the Church of Christ on Hume St. The wake will be held at the Horswood home after the service to finish the farewell in true Helen style.
Please spread the news far and wide to anyone else you might know that may not be aware as I'm afraid Jenna and I know only a small number of Mum's adoring fans :)
Would be wonderful to see you there so we can all say goodbye, share some stories and toast her on her way
Much love
Deserae and Jenna
on 14 September 2008 at 9:15 AM
message by
Jo Mould
Deserae & Jenna,
I know that I speak on behalf of the Spiritus crew in Brisbane who have known Mum and valued her commitment and passion to the people with whom she worked. We are thinking of you both and are relieved to see the close support that is upholding you now. Our prayers are with you both as you face the coming days.
Jo Mould
I know that I speak on behalf of the Spiritus crew in Brisbane who have known Mum and valued her commitment and passion to the people with whom she worked. We are thinking of you both and are relieved to see the close support that is upholding you now. Our prayers are with you both as you face the coming days.
Jo Mould
on 13 September 2008 at 9:03 PM
message by
Ken Barclay
It was a privilege and a pleasure to have met both Keith and Helen at the Narooma Blues festival last year ,my condolences to family and friends
Love and best wishes Ken Barclay
Love and best wishes Ken Barclay
on 13 September 2008 at 11:23 AM
message by
Lucy Robertson-Cuninghame
I missing you already, we all miss you
Love always to you and your beautiful daughters
Lucy RC
Love always to you and your beautiful daughters
Lucy RC
on 13 September 2008 at 10:19 AM
katie hangan
The world has certainly lost a remarkable and truly wonderful person and we are that much the poorer for her absence. There is little to take comfort in but having known Helen in any little way is almost all that I can think of to be thankful for at this time. I am also thankful that her beloved children have each other and the support of others who love and cherish them almnost as much as Keith and Helen have.
Helen, thank you for being so real and for giving so much to so many without making look like you were trying. Your wisdom is held within my thoughts and I hope I can follow your advice to me just before you left on that ill-fated trip.
Helen, thank you for being so real and for giving so much to so many without making look like you were trying. Your wisdom is held within my thoughts and I hope I can follow your advice to me just before you left on that ill-fated trip.
on 12 September 2008 at 10:27 PM
message by
Jill Hegarty
Helen you will be so missed by all, in memory of you I'm having a bottle of champers and listening to Blues, later I will dance with you on the deck. I know this may sound silly but to hell with it, we have lost a truly amazing woman.
on 12 September 2008 at 7:49 PM
message by
sharon wall
With greatest of sadness - we are left to inform you that Helens battle was completed tonight at 7pm. She spent the day saying goodbye to good friends and was embraced by her beautiful daughters all day who were there with her at the end of her journey. We know you will share with us all amazing admiration for a wonderful and loving woman who was also greatly loved. She now dances with Keith ...We now will all continue to pull together to assist their wonderful girls who contineu to be an amazing tribute to their loving parents. W will continue to use this site to provide additional details over the next few days....please find someone to have some bubbles and cuddels with tonight - - that is the way Helen wanted it to be!!
on 11 September 2008 at 8:13 PM
message by
katie hangan
I can think of no words that could possibly convey the sense of loss that accompanies the thought of Helen's absence from this physical world nor can I express through words the honour it has been to know her in even a little way. Along with many others I hope for her and Keith's girls that they could somehow find a sense of peace about this most terrible situation and go on to continue the story of love and pride and joy that they have started with Deserae and Jenna. Helen's legacy of love and compassion will live on in them, I'm sure, as will her strength and determination. They will never be without Helen and Keith's presence in their life despite the separation of the physical form. I'm struggling to say all that calls out to be said and am saying to much of 'not enough' so I'll stop. Helen, God bless. Katie.
on 11 September 2008 at 5:49 PM
message by
sharon wall
Dear All
Sadly I write to you all to let you know where things are up to. Its all been a lot quicker than anynone thought. Helen has been as strong as she could be. She was very determined to do all she could to beat it. She could not have asked more of herself. Helen has now come to the time when she deserves some rest and peace.
Helen has said her goodbyes. She is now heavily sedated and resting peacefully. We're advised that she will more than likely go at some stage tonight.
She has expressed her apreciation to you all. For your support, your love, your food, your cards, your flowers, your good wishes, your positive thoughts, your friendship.
Kathryn, Sharon and all the girls ...bless x
Sadly I write to you all to let you know where things are up to. Its all been a lot quicker than anynone thought. Helen has been as strong as she could be. She was very determined to do all she could to beat it. She could not have asked more of herself. Helen has now come to the time when she deserves some rest and peace.
Helen has said her goodbyes. She is now heavily sedated and resting peacefully. We're advised that she will more than likely go at some stage tonight.
She has expressed her apreciation to you all. For your support, your love, your food, your cards, your flowers, your good wishes, your positive thoughts, your friendship.
Kathryn, Sharon and all the girls ...bless x
on 11 September 2008 at 4:53 PM
message by
Jill Hegarty
Thanks Des & Jenna for letting us know what is going on. Sorry I haven't posted comments earlier but I am not very good at this. I was going to come up this weekend for a visit but I will leave that for now. Your mother has always been so proud of your both but at this time you have been so inspirational, you are both a credit your family who instilled such amazing values. If you need anything please let me know and give Helen a big hug and kiss for me please and let her know that she is never very far away from our thoughts. Also let Helen know that I have actually got my kitchen done, she won't believe I have actually done it at last. I hope Broadbeach is ready for you all and the water is warm. Lots of love to you all. From Jill, Peter and Adam.
on 10 September 2008 at 7:40 PM
message by
HOWARD RIACH
Thanks for the update Deserae.
Jane and I send all our love and deep affection to Helen at this time and we do hope that she is able dip her toes in Broadwater.
Lots of love to her and lots of thoughts of support to you and Jenna during this time.
Howard + Jane
Nambour
Jane and I send all our love and deep affection to Helen at this time and we do hope that she is able dip her toes in Broadwater.
Lots of love to her and lots of thoughts of support to you and Jenna during this time.
Howard + Jane
Nambour
on 10 September 2008 at 4:37 PM
message by
Deserae Horswood
hi everyone,
Des and Jenna here. First of all wanting to say a giant thank you for all the messages of love and support that have been coming through this site... every little bit of love counts.
Medically the news hasn't been good over the last couple of days. After masses of tests, xrays, scans etc etc etc the doctors have conveyed to us that Mum's condition has progressed to a stage where active treatment options have run out. This being so Mum is now considered a palliative patient with the focus being comfort in the short term.
Despite all this, Mum is determined to come home and even planning a trip to Broadbeach to dip her toes in the water.
We'll keep you posted as to Mums travels, but please keep in mind that she is weak and needs her rest at the moment. This doesn't mean we don't love you :) of course we do, but at this stage we will have to let you know when visitors are appropriate.
But please keep the love flowing as Mum receives all of it!
xoxo
Des and Jenna here. First of all wanting to say a giant thank you for all the messages of love and support that have been coming through this site... every little bit of love counts.
Medically the news hasn't been good over the last couple of days. After masses of tests, xrays, scans etc etc etc the doctors have conveyed to us that Mum's condition has progressed to a stage where active treatment options have run out. This being so Mum is now considered a palliative patient with the focus being comfort in the short term.
Despite all this, Mum is determined to come home and even planning a trip to Broadbeach to dip her toes in the water.
We'll keep you posted as to Mums travels, but please keep in mind that she is weak and needs her rest at the moment. This doesn't mean we don't love you :) of course we do, but at this stage we will have to let you know when visitors are appropriate.
But please keep the love flowing as Mum receives all of it!
xoxo
on 10 September 2008 at 4:16 PM
message by
sharon wall
ps.....sorry....noted many spelling mistakes in last message how i miss`spell check!!!...but not bad for someone who has not slept for a few nights...and it is after all 1am!!! Yikes...
on 10 September 2008 at 1:07 AM
message by
sharon wall
Hi all ...for those wiating for an update - will make sure that happens tomorrow via the girls. It has been a very hard day today for them with them taking on much additional information regarding their mums ongoing care as well as partiiapign in her needs today - and all in the face of haign to deal with the the death of their loved grandmother today (Keiths Mum) We all feel overwhelmed for how much these gorgeous young women are forced to endure - but endure they will. (They are after all the wonderful children of their wonderful parents!!!) They have promised to send you an update on their Mum tomorrow....after hopefuly a good nights sleep - which they so deserve...and can more ably achieve because the gorgous Dan is doing the "unofficial" night shift with Helen" thanks Dan..we love you!!
xx
xx
on 10 September 2008 at 1:03 AM
message by
sharon wall
ps guys please note Helen is in the medical ward...where she has been before....not in palliative care as previously thought x
on 9 September 2008 at 10:30 AM
message by
sharon wall
Hi Guys
Arrived yesterday.....only to find Helen just being admitted to hospital (Toowoomba Base) following her body scan yesterday. Today will be a flurry of tests etc with further outcomes becoming clearer as the day progresses. I will ensure that the girls provide a further up date for you all tonight. Meanwhile a time of love, support for the girls and many prayers x
Arrived yesterday.....only to find Helen just being admitted to hospital (Toowoomba Base) following her body scan yesterday. Today will be a flurry of tests etc with further outcomes becoming clearer as the day progresses. I will ensure that the girls provide a further up date for you all tonight. Meanwhile a time of love, support for the girls and many prayers x
on 9 September 2008 at 10:27 AM
message by
susan cullinan
Hi all. Saw Helen last night at Hospital and she was still mind blowingly positive. We chatted about her plans to write a best seller - Convalescent Cookery. Go girl is all I could say. So despite her desire for bland food - in fact she asked for bread and butter pud! - she did admit to feeling worse...more weak and more pain. She's currently in Medical Ward 4 at ToowoombaHospital, bed 4. susan xx
on 9 September 2008 at 10:19 AM
message by
sharon wall
Hi everyone
Helen has been admitted to the palliative care ward at Toowoomba Base last night. Further test results will be available a bit later today and I'll let you know what their thinking is - being in palliatve care can indicate they may no longer treat Helen actively but rather just focus on making her comfortable. Helen has faced this with such strength and determination...she could not have expected more from herself. If sheer willpower could keep her going she would keep going. My respect and admiration for her only increases.
Will keep you posted.
regards Kathryn
Helen has been admitted to the palliative care ward at Toowoomba Base last night. Further test results will be available a bit later today and I'll let you know what their thinking is - being in palliatve care can indicate they may no longer treat Helen actively but rather just focus on making her comfortable. Helen has faced this with such strength and determination...she could not have expected more from herself. If sheer willpower could keep her going she would keep going. My respect and admiration for her only increases.
Will keep you posted.
regards Kathryn
on 9 September 2008 at 10:05 AM
Hi Helen
Had a great night at the opera last night with Sharon and Mal saw Don Giovanni and it was superb. Sharon told me she was heading up to Queensland next week so that wll be a welcoming face for you she is sending all our best wishes to you.
Kind Regards Ken Barclay
Had a great night at the opera last night with Sharon and Mal saw Don Giovanni and it was superb. Sharon told me she was heading up to Queensland next week so that wll be a welcoming face for you she is sending all our best wishes to you.
Kind Regards Ken Barclay
on 6 September 2008 at 1:26 PM
message by
Kathryn Harrison
But as always Helen remains as positive as she can be. She is however sorting things out for the girls and is comforted to know that they have their family and many adoptive aunts and uncles they can call on in future. She follows this up by saying she'll still be here in 10 years time. So we remain positive in her presence. Helen found Linda and I having a little cry and her response "are you girls having a moment?" and gave us a hug.
She did make her own bread and butter pud on Thursday night which was a complete triumph - she's still got it.
Must tell the semolina story. I met semolina for the first time last week making her breakfast and she gave me instructions. However her instructions weren't as clear when Dan made breakfast yesterday. "Add soy milk and stir until thick" which he did for some time failed to mention heat was involved. Dan stirred for some time before taking it into her and asking why it wasn't thickening........
Gotta look for the laughs....
cheers Kathryn
She did make her own bread and butter pud on Thursday night which was a complete triumph - she's still got it.
Must tell the semolina story. I met semolina for the first time last week making her breakfast and she gave me instructions. However her instructions weren't as clear when Dan made breakfast yesterday. "Add soy milk and stir until thick" which he did for some time failed to mention heat was involved. Dan stirred for some time before taking it into her and asking why it wasn't thickening........
Gotta look for the laughs....
cheers Kathryn
on 6 September 2008 at 10:21 AM
message by
Kathryn Harrison
Hi to all
Wondering whether anyone is going to Toowoomba from Bris on Monday? Sharon's plane gets in about 11.30 and she's happy to catch the bus up - I just thought I'd check if anyone's going that way.
If it doesn't rain as they say....Des and Jen made a trip to Tewantin to see their Grandmother (Keith's Mum) who is in ICU up there and more than likely won't come out. Whilst she is 84 and all agree she doesn't need to suffer any more its still a bit tough. No need to guess where the girls inherited their strength from......
They are still doing an amazing job of taking care of Helen and making time to be 19 and 23 - which of course Helen insists they do.
Its been a somewhat difficult week and I'm going to risk Helen's ire to let you all know whats happening. Her latest scans show increasing mets in her bones - they have spread which was not the hope. She will have further scans next week and then make a decision re future treatment. Its plain tough.
Wondering whether anyone is going to Toowoomba from Bris on Monday? Sharon's plane gets in about 11.30 and she's happy to catch the bus up - I just thought I'd check if anyone's going that way.
If it doesn't rain as they say....Des and Jen made a trip to Tewantin to see their Grandmother (Keith's Mum) who is in ICU up there and more than likely won't come out. Whilst she is 84 and all agree she doesn't need to suffer any more its still a bit tough. No need to guess where the girls inherited their strength from......
They are still doing an amazing job of taking care of Helen and making time to be 19 and 23 - which of course Helen insists they do.
Its been a somewhat difficult week and I'm going to risk Helen's ire to let you all know whats happening. Her latest scans show increasing mets in her bones - they have spread which was not the hope. She will have further scans next week and then make a decision re future treatment. Its plain tough.
on 6 September 2008 at 10:10 AM
message by
sharon wall
Good advice honey - thanks on everyones behalf...and thank you to the amazing Dan for the epistle!!!! bigger than Ben Hur honey - but so good to get this information for us that are struggling such a long way a way... Thak you also Linda for your love for a week - gorgeous for Heleni (italian for Hleen!!!) to have such wonderful and caring friends...to share this information with other caring and loving friends..look forward to seeing you guys next week - up on Monday the 8th for a week!!!!
on 2 September 2008 at 9:47 PM
message by
Kathryn Harrison
Something going a bit weird with this website.....I decided their certificate mightn't be up to date but my firewall and internet security is so I kept going - my definition of living on the edge!!
I forgot to mention the 2-4 nana nap is still in place so maybe call in the morning for a visit later in the day (before 2 after 4)?
Much as she would love to see everyone she is still doing chemo so we will have to make her pace herself....not easily done some days...
thanks Kathryn
I forgot to mention the 2-4 nana nap is still in place so maybe call in the morning for a visit later in the day (before 2 after 4)?
Much as she would love to see everyone she is still doing chemo so we will have to make her pace herself....not easily done some days...
thanks Kathryn
on 2 September 2008 at 7:54 PM
message by
Kathryn Harrison
Hi all
Just talking to Helen and she would like people to visit - just check she's up to it before you go by calling 46325547. She doesn't always hold up for long so if you could plan for a relatively short visit that would be good.
cheers Kathryn
Just talking to Helen and she would like people to visit - just check she's up to it before you go by calling 46325547. She doesn't always hold up for long so if you could plan for a relatively short visit that would be good.
cheers Kathryn
on 2 September 2008 at 7:46 PM
message by
katie hangan
Hey, Helen! Katie Hangan here and just wanting to let you know how often I think of you and the 'Girls'. I guess I'll haev to refer to them as women now. I hope you are doing okay. Hen and I would love to come visit but understand that this is pretty difficult for you at the moment and must eb reserved for special people. Let us know when it suits you and we'll try to get there. I must apologise for being slack - I haven't got around to getting the choc rocks to you again. I must try and do that asap. Love, Katie.
on 1 September 2008 at 6:14 PM
message by
Kathryn Harrison
Hi all
Helen holding up ok after chemo this week. Bit rough the first 2-3 days after but came good by today...even had an outing and there is photographic evidence in the photo section.
She sends her love to all
cheers Kathryn
Helen holding up ok after chemo this week. Bit rough the first 2-3 days after but came good by today...even had an outing and there is photographic evidence in the photo section.
She sends her love to all
cheers Kathryn
on 31 August 2008 at 3:38 PM
message by
Linda Jenner
Hi everyone,
Thanks Dan for the excellent post:-) Just a quick message to let you all know that Helen was told that she needs more regular rest, so the plan is for her to rest/sleep each day between 2pm and 4pm or thereabouts. So...to Helen, Jen & Des's wonderfully supportive community, if you could avoid phoning or visiting between 2-4pm daily it would really help Helen to maintain a regular routine of rest.
Thanks everyone...she sends her love and thanks to you all.
Linda
Thanks Dan for the excellent post:-) Just a quick message to let you all know that Helen was told that she needs more regular rest, so the plan is for her to rest/sleep each day between 2pm and 4pm or thereabouts. So...to Helen, Jen & Des's wonderfully supportive community, if you could avoid phoning or visiting between 2-4pm daily it would really help Helen to maintain a regular routine of rest.
Thanks everyone...she sends her love and thanks to you all.
Linda
on 27 August 2008 at 3:16 PM
message by
dan hagan
Hi to all,
Today (Wednesday) Helen is off to Chemo, yes a day later than planned due to a little hiccup late last week. Helen was looking a bit ordinary and so Dr Flynn was called in to the home (bless her heart, she appears a great GP!). Diagnosis was low platelets – part of the blood system; red blood cells, white blood cells and platelet thingys!. Apparently due to the lack of them and their oxygen carrying role, Helen wasn’t her best. So off to the Medical Ward at the Tba General. A couple of bags of the good “packed cells”, a consult with Dr Brodribb (I think there are only a couple of doctors left in Tba that haven’t been involved in Helen’s care!!) and back home the next day.
.... to be continued
Today (Wednesday) Helen is off to Chemo, yes a day later than planned due to a little hiccup late last week. Helen was looking a bit ordinary and so Dr Flynn was called in to the home (bless her heart, she appears a great GP!). Diagnosis was low platelets – part of the blood system; red blood cells, white blood cells and platelet thingys!. Apparently due to the lack of them and their oxygen carrying role, Helen wasn’t her best. So off to the Medical Ward at the Tba General. A couple of bags of the good “packed cells”, a consult with Dr Brodribb (I think there are only a couple of doctors left in Tba that haven’t been involved in Helen’s care!!) and back home the next day.
.... to be continued
The reason for the lack/loss of platelets, I’m not sure of, and even if the chemo might be a culprit, this was not going to stop Helen from getting back into Treatment!! Visit to Dr Flynn on Monday, blood test showed platelet count up, so only a delay from Tues to Wed for treatment. I suppose Helen will have to negotiate with the Oncology people, but my money is on Helen with the support of Jenna and Linda. Linda arrived Monday to carry on the good work by visiting celebrities to assist in the work in home by Jenna & Deserae and the yokels locals. Me, being from out of town (Kingsthorpe, I’m claiming CELEBRITY status!!).
Kathryn, was up last week, the first person to use the newly created “flat” and gives the mattress a gold star standard, so should be good for everyone. Good work by Kathryn last week, a lot of travelling, a funeral to attend and being there when Helen went “down hill” (Kathryn will probably dispute my descriptors of “down hill” “little hiccup” “bit ordinary” “wasn’t her best”). Ohh …. and was the instigator of finalising the roster for the next few weeks.
Just in case it is thought that just her family and friends think Helen is important, the health system must think so too . . . Helen is the only person in Tba (maybe QLD?) who is on the vacuum system to drain her lung daily; a very expensive system – but we all know she’s worth it!!
Speaking of pictures, I will see if Jenna might be able to take some of the various doctors and staff at the hospital and perhaps Helen herself and those around her to add to the website.
Just in case it is thought that just her family and friends think Helen is important, the health system must think so too . . . Helen is the only person in Tba (maybe QLD?) who is on the vacuum system to drain her lung daily; a very expensive system – but we all know she’s worth it!!
Speaking of pictures, I will see if Jenna might be able to take some of the various doctors and staff at the hospital and perhaps Helen herself and those around her to add to the website.
Jenna and Kathryn both report devastating experiences at the hands of Medicare … anyone who knows of a disgruntled ex-postal worker with access to weapons; please point them in that direction (NB only aim a anally retentive idiots, identified by Medicare staff badges!!!). Des is off in Brisbane to a concert, with Jenna having just returned from a little time away.
Pain relief is still a big issue, however, Helen needs to be on the oxygen less and use of ventolin via the nebuliser is also reduced. Appetite is very good, participating in the preparation of a great meal last week and has been increasing (perhaps too much) her socialising and social outings. The ‘bossiness’ is still on the increase, thought to be a good indicator?!?!?!? must be a girl thing . . . . . like crying when they are happy . .. . go figure!
Dan
Pain relief is still a big issue, however, Helen needs to be on the oxygen less and use of ventolin via the nebuliser is also reduced. Appetite is very good, participating in the preparation of a great meal last week and has been increasing (perhaps too much) her socialising and social outings. The ‘bossiness’ is still on the increase, thought to be a good indicator?!?!?!? must be a girl thing . . . . . like crying when they are happy . .. . go figure!
Dan
on 27 August 2008 at 10:13 AM
message by
sharon wall
Hi Honey - Just getting head up long enough to plan next trip up to spend time with you. Will talk to the girls and confirm this week. Meanwhile sending you stacks of healing love from paradise. Also thanks to all of the team up there who have provided such energy and care for you on this intimate journey and thanks to them for keeping us more geographically remote people in contact with what is happening. Special hugs to you and the gals - and see you soon galfriend Shaz Mal and Mr B
on 25 August 2008 at 9:17 AM
message by
lisette dillon
Hi Helen, Des and Jenna
We've had dodgy internet in the north of England but it's been good to be able to log on when we can and keep in touch with how things are going. We saw Dom in Dover and he sends across the ocean his biggest hugs (which in reality could be quite painful!) and all his good thoughts for an excellent response to treatment, Helen. Tim and I are keeping you all very much in our daily thoughts and we look forward to any news, baby steps or whatever, that mean some comfort and progress. So, please know that we're 'with you' as best we can from far away, and special hugs for Des..
Love from Lisette and Tim
We've had dodgy internet in the north of England but it's been good to be able to log on when we can and keep in touch with how things are going. We saw Dom in Dover and he sends across the ocean his biggest hugs (which in reality could be quite painful!) and all his good thoughts for an excellent response to treatment, Helen. Tim and I are keeping you all very much in our daily thoughts and we look forward to any news, baby steps or whatever, that mean some comfort and progress. So, please know that we're 'with you' as best we can from far away, and special hugs for Des..
Love from Lisette and Tim
on 25 August 2008 at 1:03 AM
message by
Linda Jenner
Hi Hel, Des & Jen... I hope you can feel the great big powerful love, bear hugs and positive vibes beaming at you from sunny CoffsHarbour... Have a restful break from the prods and pokes this week Helen and substitute some therapeutic bubbles instead. I wish I were there to share it with you. Thanks so much Sharon, Dan & Kathryn for keeping us all updated.
*hug* Linda (Glozier) Jenner
*hug* Linda (Glozier) Jenner
on 20 August 2008 at 11:39 AM
message by
sharon wall
Hi all
Helen has this week off chemo - good for her to have a break from being prodded and poked. She must be feeling better she's a bit cranky this morning (always a good sign I say!!). Its such a day to day thing that its hard to arrange for visitors but I think she's getting some energy back and may well be up to some on the weekend. I KNOW the signs out the front of the house are working (Dan's work) they nearly put me off and I'd driven from Bris! But THANK YOU all for giving her this time to gather her strength. We all know she loves having people around and hopefully with a bit more energy she'll be up to visitors soon.
Helen is planning to have a look at this site a bit later today (hasn't to date) so feel free to leave a message for her.
cheers to all Kathryn
Helen has this week off chemo - good for her to have a break from being prodded and poked. She must be feeling better she's a bit cranky this morning (always a good sign I say!!). Its such a day to day thing that its hard to arrange for visitors but I think she's getting some energy back and may well be up to some on the weekend. I KNOW the signs out the front of the house are working (Dan's work) they nearly put me off and I'd driven from Bris! But THANK YOU all for giving her this time to gather her strength. We all know she loves having people around and hopefully with a bit more energy she'll be up to visitors soon.
Helen is planning to have a look at this site a bit later today (hasn't to date) so feel free to leave a message for her.
cheers to all Kathryn
on 20 August 2008 at 10:32 AM
rebecca riseley
To everyone here, but particularly H, it's great to hear that you are happy at home, being well fed, in good company and actually up to a glass of champers! Just a bit of 'nothing information', but I took my girls to see Mama Mia last weekend, and I'm not 100% sure why, but there are 3 middle age, crazy gals who get together for a special occasion, dancing, singing and drinking, and funnily enough an image of you and your friends popped into my head - perhaps not so weird if stories are true (Surely someone else has seen the movie and thought of Helen!?!)! We miss you heaps at work, but await the next pizza call! Love to you, your girls and friends, Bec and co xoxo
on 13 August 2008 at 10:17 PM
message by
David Specker
Des, Jenna, Lee, Kathryn, Ralphie(of course), Mark, Dan, the rest of all of you supportive friends, you are doing such a fabulous job helping make Helen's environment as comfy and conducive as possible.
I only wish I could be there myself in person but unfortunately the tyranny of distance at this time prevents that.
Hopefully soon I can be excused from Parliament and escape this freezing Canberra weather to offer my support first hand.
Helen, my absolute best thoughts are with you and am so proud of the way you are taking this on.
I will keep my healing vibes coming at ya and will work on getting my smiling melon in front of your lovely face.
Best Regards always, David xxxoxox
I only wish I could be there myself in person but unfortunately the tyranny of distance at this time prevents that.
Hopefully soon I can be excused from Parliament and escape this freezing Canberra weather to offer my support first hand.
Helen, my absolute best thoughts are with you and am so proud of the way you are taking this on.
I will keep my healing vibes coming at ya and will work on getting my smiling melon in front of your lovely face.
Best Regards always, David xxxoxox
on 13 August 2008 at 6:35 PM
message by
Kathryn Harrison
Hi all
Helen up having chemo and Jenn picking her up as I write. Fallout from last lot wasn't significant so hopefully this will go to plan too. Feeling a lot better and able to organise her own pillows (milestone as its always hard for others to do)and get comfortable. Quite upbeat and enjoyed a champers last night. Thanks for the meals - she's enjoying very bland food - a first I think!
We're as organised as I think we can be at this point.
Hopefully Helen will be up to checking this site shortly (hasn't as yet felt up to it) so feel free to leave messages for her.
cheers to you all Kathryn
Helen up having chemo and Jenn picking her up as I write. Fallout from last lot wasn't significant so hopefully this will go to plan too. Feeling a lot better and able to organise her own pillows (milestone as its always hard for others to do)and get comfortable. Quite upbeat and enjoyed a champers last night. Thanks for the meals - she's enjoying very bland food - a first I think!
We're as organised as I think we can be at this point.
Hopefully Helen will be up to checking this site shortly (hasn't as yet felt up to it) so feel free to leave messages for her.
cheers to you all Kathryn
on 13 August 2008 at 11:20 AM
message by
dan hagan
Hi to all,
Well its Wed am (very early!). Helen's been out of hospital for the full week!! and is off to Chemo today at 9am. Not a bad milestone. Kathryn arrived Monday and Terry joined her the next day. Bernie unfortunately isn't able to come up as arranged as she has a cold and as you know, Helen's immune system is down at the moment during Chemo.
Mark did a fabulous job on shifting the shower head from one side to the other and Helen is very happy with the result. Des & Jenn continue to do a sterling job of all the tasks involved in not only keeping 'mum' at home, but also enjoying their time with her and doing some balancing with their own lives/interests. Jenn's Lee, Tery and myself are going to raise the height of the side gate (using some bamboo.... don't complain until you see it!) to increase the Horswood family's privacy when they are on the back verandah. A big screen TV has taken residence in the lounge room courtesy of Lee and is great to watch the olympics on.
Dan
Well its Wed am (very early!). Helen's been out of hospital for the full week!! and is off to Chemo today at 9am. Not a bad milestone. Kathryn arrived Monday and Terry joined her the next day. Bernie unfortunately isn't able to come up as arranged as she has a cold and as you know, Helen's immune system is down at the moment during Chemo.
Mark did a fabulous job on shifting the shower head from one side to the other and Helen is very happy with the result. Des & Jenn continue to do a sterling job of all the tasks involved in not only keeping 'mum' at home, but also enjoying their time with her and doing some balancing with their own lives/interests. Jenn's Lee, Tery and myself are going to raise the height of the side gate (using some bamboo.... don't complain until you see it!) to increase the Horswood family's privacy when they are on the back verandah. A big screen TV has taken residence in the lounge room courtesy of Lee and is great to watch the olympics on.
Dan
on 13 August 2008 at 1:50 AM
message by
Kathryn Harrison
Shall do Dan - slow cooker at the ready and will make single serves. Good to hear she's doing as well as she is at this demanding stage of the process....and don't worry we appreciate its a day by day deal, so best capture the positives I say!
See you next week.
regards Kathryn
See you next week.
regards Kathryn
on 9 August 2008 at 3:42 PM
message by
dan hagan
Hi again,
I believe that Helen is progressing/responding ok. Improvements are small but significant and encouraging. More mobile, but leg muscles need retraining, better colour which suggests gooder(!) oxygen/lung capacity. Appetite good, sleeping increasingly longer (though still only a couple of hours at a time)and deeper. No signs of any side effects to Chemo as yet. Also her concentration (therefore memory) for tasks and tolerating/asking questions is strengthing. All this in the context of quite an exhauting schedule over the past week; seeing new GP, move home, Chemo, etc.
I'll look a dill if things have changed since I was there!! Dan
I believe that Helen is progressing/responding ok. Improvements are small but significant and encouraging. More mobile, but leg muscles need retraining, better colour which suggests gooder(!) oxygen/lung capacity. Appetite good, sleeping increasingly longer (though still only a couple of hours at a time)and deeper. No signs of any side effects to Chemo as yet. Also her concentration (therefore memory) for tasks and tolerating/asking questions is strengthing. All this in the context of quite an exhauting schedule over the past week; seeing new GP, move home, Chemo, etc.
I'll look a dill if things have changed since I was there!! Dan
on 9 August 2008 at 1:48 PM
message by
dan hagan
Hi all,
Can I add to Susan's entry re: meals - GP suggested that any meats be slow cooked and just to be tricky vegetables should be not over cooked. Cassoroles, stews, and like (in the single serve disposable containers per Susan's entry)
Des & Jenn are doing a super terrific job, gloving, gowning, goggles to change drains, have got the whole medication rountine backwards with their eyes shut. It is pleasing to see these young women step up to the task with great love, demonstrating responsiblity and maturity beyond their years. And their capacity for tolerance includes allowing an odd old man to indulge his passions for colouring in, inventions and forms....... Farmer Dan
Can I add to Susan's entry re: meals - GP suggested that any meats be slow cooked and just to be tricky vegetables should be not over cooked. Cassoroles, stews, and like (in the single serve disposable containers per Susan's entry)
Des & Jenn are doing a super terrific job, gloving, gowning, goggles to change drains, have got the whole medication rountine backwards with their eyes shut. It is pleasing to see these young women step up to the task with great love, demonstrating responsiblity and maturity beyond their years. And their capacity for tolerance includes allowing an odd old man to indulge his passions for colouring in, inventions and forms....... Farmer Dan
on 9 August 2008 at 1:36 PM
message by
Kathryn Harrison
Hi Helen, Des Jen Ralph
Back from the sunny north and will be up Monday night until Thurs when Bernie comes. Will refresh flower supply. Can you eat curries.......?
love Kathryn
Back from the sunny north and will be up Monday night until Thurs when Bernie comes. Will refresh flower supply. Can you eat curries.......?
love Kathryn
on 8 August 2008 at 5:19 PM
message by
Nancy McCulloch
Hi all, the girls have asked to to pass on a request that people phone the house before they pop in this will be greatly appreciated. Saw Helen last night and she sure looked happy to be home. Nancy McCulloch.
on 8 August 2008 at 4:42 PM
message by
susan cullinan
Hi all. Just chatted with Helen. She's not feeling too bad after her first dose of chemo. One thing Helen's thinking about more now she's home is managing the food side of life as the girls are wonderful at so many other things. Des is off to Brisbane this week end and so am I. So if anyone is able to do up some simple, easily digestible, high protein meals like beef or chicken or legume soups in single serving sizes for freezing that would be so appreciated. Also, in terms of visitors, Dan has worked up a system of signs advising on whether Helen needs to rest or be alone, so just be guided by them. He's also done a great job of organising the medication so all is good there. And Helen is logging on to this today I think for the first time! Go girrrrrrrrrl!
on 8 August 2008 at 1:21 PM
message by
sharon wall
Thanks you !!!!- you gorgeous things (??@!@!!) - Nancy and Susan - and thank you for keep us more distantly informed people in contact with what is happening - Love to you both... and all of those that are supporting Helen and her girls - and most importantly to Helen and Des and Jenna - Bless ...and Yeh...WELCOME HOME GALFRIEND !!!!!!oops and ...the bloke????Ralphy!!!Mummy is home!!!!) xx
on 6 August 2008 at 10:28 PM
message by
susan cullinan
Hi everyone Susan here. when I saw Helen this morning she was about to have her first chemo treatment here at ToowoombaHospital. Then if all goes well she's discharged to go home, to enjoy fresh air, sunshine, her gorgeous girls and Ralphy. Yay! She did say she wanted to lie low for a bit and sleep, so no visitors tonight anyway, and we'll just wait and see how she responds to the chemo. I think she may well start to access this blog so this will be a great way to get messages through. She is always heartened by messages of love and support. Take care all...susan (0438 270 290)
on 6 August 2008 at 2:23 PM
message by
Nancy McCulloch
Hi Folks, It was great to see Helen at home on Sunday for the day, she was radiant to be in her own place with the girls and a few friends. We are hoping she can come home on Wednesday to stay.One thing that is in need of attention is all the wonderful people who bought food for Keith's day and also since Helen's illness need to pick up their plates and casserole dishes. If you should call in and no one is home they are on a table on the side verandah covered by a cloth. Please could you come and collect them because the wonderfully huge response if a bit hard to store. Thanks again Nancy
on 4 August 2008 at 10:44 PM
message by
sharon proudley
Hi Helen, our thoughts and prayers are with you and your beautiful girls... i know that i don't no you well, but what i have seen is a kind and gentle person that always has a smile on her face... is it any wonder you have so many people sending you there love as do we.
Sharon Proudley, Ann talor
Sharon Proudley, Ann talor
on 4 August 2008 at 9:33 AM
message by
sharon wall
Hi Helen...my one week old next of kin...finally got onto this site but I am sure you would have been feeling my vibes of kind thoughts and prayers and everything POSITIVE as you *live* this part of your journey. What a woman! love to you Colleen xo
on 3 August 2008 at 7:45 AM
message by
sharon wall
Hi guys - just a lttile bit of an update for those that are not living in Toowoomba and are not able to see Helen regularly. Bumpy week for Helen and a few disapointments for her - as well as those who had anticipated seeing her in Brissie (like myself) Most importantly though the week has ended on a bit of a high. She will not be having the plueradesis - (thanks Daz and Deb for your work in trying) but now has a semi permanent drain in her lung - and most importantly will be coming home Wednesday to start chemotherapy. Back to good food, a warm home,sunshine, loving friends and most importantly two very beautiful, loving and excited daughters....and of course Ralphy.....She is feeling increasingly empowered and much more in control and ready for the fight - go you girlfriend!!!! Sending lots of love and healing energies from us all x
on 2 August 2008 at 1:21 PM
message by
Andy Hall
Hi Helen,We certainly are thinking of you and I'd like to talk more but into the ether, I’ve only just begun speaking to answering machines the luddite that I am.
Whilst the words may be little thin on the ground our thoughts are the complete antithesis, We admire your courage and wish you strength, if what they say about " when the going gets tough " is even mildly true, then it's time to get going Gal!
Lotsa Luv
Andy & Rello
Whilst the words may be little thin on the ground our thoughts are the complete antithesis, We admire your courage and wish you strength, if what they say about " when the going gets tough " is even mildly true, then it's time to get going Gal!
Lotsa Luv
Andy & Rello
on 29 July 2008 at 11:04 AM
message by
Glenda Anderson
Hi Helen,
Have seen the lovely photos of you and Chloe. Your room does indeed look like a florist shop. Charni and Chris are planning to come and visit you on Thursday 31/07 so look forward to seeing you then. Love you lots
Chris David Charni & Nat
Have seen the lovely photos of you and Chloe. Your room does indeed look like a florist shop. Charni and Chris are planning to come and visit you on Thursday 31/07 so look forward to seeing you then. Love you lots
Chris David Charni & Nat
on 29 July 2008 at 10:28 AM
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